Unmasking the Silent Struggle of PCOS
In a world where silence often cloaks the challenges faced by women with Polycystic Ovary Syndrome (PCOS), entrepreneur Seyi Amao emerges as a beacon of empowerment. The riveting documentary, “Where the Heck Is My Period,” produced by the talented executive director Stephanie Coker Aderinokun, thrusts Seyi and her community, PCOS Conquerors, into the spotlight.
Why This Documentary Matters
Q: Seyi, congratulations on being featured in the documentary “Where the Heck Is My Period.” Can you tell us about your journey with PCOS and how it led to the creation of PCOS Conquerors?
Seyi Amao: Thank you! My journey with PCOS began in 2017 when I received an official diagnosis. However, the symptoms had haunted me since 2006. Misdiagnoses and unexplained menorrhagia (heavy bleeding) left me feeling isolated and quite frankly, depressed. I was also disheartened by the lack of resources and support available for women with this condition in Nigeria and across Africa. In 2019, I decided to break the silence and raise awareness by sharing my personal experiences on social media. That’s when PCOS Conquerors was born—a safe haven for women to share experiences, find support, and access vital resources.
Q: What motivated you to participate in the documentary “Where the Heck is My Period,” and what impact do you hope it will have on society?
Seyi Amao: Participating in the documentary “Where the Heck is My Period” was a natural extension of my passion for raising awareness about PCOS and advocating for better healthcare for women. I also spoke to members of my community and about 5 other ladies were also passionate about sharing their stories. Some even flew into Lagos State, Nigeria to be a part of this project. Special thanks to Stephanie and the production team for making the necessary arrangements to ensure these ladies took part.
This documentary provided a platform to share the stories of individuals living with PCOS and shed light on the challenges they face. By sharing these narratives, the aim is to break the silence surrounding PCOS, challenge societal norms, and spark conversations about reproductive health issues. My hope is that this documentary will educate the public, inspire empathy and understanding, and ultimately drive positive change in how PCOS is perceived and treated in society.
Q: What is PCOS, and why is it essential to raise awareness about it?
Seyi Amao: Polycystic Ovary Syndrome (PCOS) is a hormonal disorder affecting girls and women of reproductive age. It disrupts ovulation, leading to irregular periods, cysts on the ovaries, and various health complications. Apart from the popular side effect of Infertility, the long-term effects of PCOS can lead to Fatty Liver Disease, Diabetes, Heart Problems and Cancer if not managed. Raising awareness is crucial because PCOS affects approximately 1 in 10 women globally, yet it remains shrouded in silence and stigma. By educating society, we empower women to reclaim control over their health.
The Journey of PCOS Conquerors
Q: How has PCOS Conquerors impacted the lives of women with PCOS?
Seyi Amao: PCOS Conquerors has become a trusted platform for many women over the last 5 years. The platform provides comprehensive support, education, and resources for women battling PCOS. Our growing community of over 700 members on WhatsApp offers a safe space for individuals to connect, share experiences, and empower each other on their journey to managing and overcoming PCOS. The impact has been profound, inspiring women to take charge of their health, find a sense of belonging, and break the stigma surrounding this reproductive health disorder in their lives.
Q: What advice do you have for women who suspect they might have PCOS? How can they get diagnosed and take charge of their health?
Seyi Amao: If you suspect PCOS, seek medical advice promptly. Key symptoms include irregular menstrual cycles, weight gain, excessive hair growth, and hormonal acne. Early diagnosis is crucial. Once diagnosed, focus on lifestyle modifications, personalized meal plans, and supplements. Remember, you’re not alone—join communities like PCOS Conquerors for support.
Q: How can individuals join the PCOS Conquerors community and contribute to raising awareness about PCOS?
Seyi Amao: Joining our community is easy and can be done through our Instagram page (@pcosconquerors) and WhatsApp group. By becoming a part of our community, individuals can access valuable resources, connect with others facing similar challenges, and find the support they need to navigate their PCOS journey.
Additionally, individuals can contribute to raising awareness about PCOS by sharing their stories, advocating for improved healthcare services, and participating in awareness campaigns and events. Together, we can amplify our voices, challenge misconceptions, and create a more inclusive and supportive environment for individuals affected by PCOS.
Society’s Role in Supporting Women with PCOS
Q: How can society play a role in supporting women with PCOS?
Seyi Amao: Society plays a pivotal role in breaking taboos and fostering awareness. By supporting organizations like PCOS Conquerors, we uplift those affected. Let’s normalize conversations around reproductive health and create a compassionate environment where women feel heard and understood. I recently wrote an article on how to navigate PCOS better in Africa and push for more inclusive healthcare for women. Read more about it, here!
Watch the Documentary
Q: Where can viewers watch the documentary “Where the Heck Is My Period”?
Seyi Amao: The documentary is now streaming on Amazon Prime Video. Join myself and 10 other equally amazing African women as we share our stories, challenge stereotypes, and pave the way for a more informed and compassionate world.
#WhereTheHeckIsMyPeriod #EveryGirlHasAPeriod #PCOSCONQUERORS
